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Palliative care for bowel cancer

Most cases of bowel cancer are permanently cured. However, in some cases, the cancer comes back or is found to have spread while still in the early stages. Metastatic cancer is a stage of cancer in which the cancer has spread (metastasised) to the internal organs or bones.

Bowel, also called colorectal, cancers are common types of cancer, especially in the elderly population. Most cases can be permanently cured with surgery, radiation therapy, or medication, but in some cases, the cancer comes back after being treated, or metastases are discovered in the early stages of illness. Metastases caused by bowel cancer can also be treated locally, using methods such as surgery, which can efficiently slow down the progression of the illness. Even if metastases can’t be treated surgically, chemotherapy can slow down the cancer’s progression, sometimes for several years.

It’s important to let your attending physician and other members of your care team know about any symptoms you’re experiencing, because symptoms caused by metastases can be managed effectively. Palliative care, aimed at symptom management, is provided alongside chemotherapy , and continues after other treatments are stopped, in other words when moving to palliative care intent.

Symptoms depend on where the metastases are located. Bowel cancers typically spread to the liver and lungs, showing little symptoms for a long time. Sometimes bowel cancer also spreads to the abdominal cavity, bones, or other internal organs. Rectal cancer may recur locally in the pelvic area. Read on for more information about the most common symptoms caused by metastases.

Symptoms related to metastases in the lungs and liver

Individual metastases in the lungs and liver usually don’t cause many symptoms, meaning that metastatic bowel cancer may be fairly quiet in terms of symptoms. Individual metastases in the liver and lungs can be treated locally with surgery, and in the case of lung metastases, with radiation therapy; the aim is to slow down the cancer’s progression. If metastases in the lungs are causing shortness of breath or coughing, the symptoms may be relieved with medicines or radiation therapy. If there is a build-up of fluid around the lungs, the fluid can be removed with a needle.

In many cases, liver metastases don’t cause symptoms until there is a large number of them and liver function starts to suffer. A common symptom experienced at this point is increasing fatigue. Corticosteroid medicines may be helpful.

Bone pain and other symptoms related to bone metastases

In bowel cancer, bone metastases usually appear as individual cases, most commonly in the spine. In terms of symptoms, they cause pain that gets worse when moving. Both pain medicines and radiation therapy are effective. Bone metastases can also cause fractures, and metastases in the spine can press on the spinal cord. In such cases, acute medical treatment is required.

Bowel function problems

It’s possible for cancer to spread to the abdominal cavity and disrupt bowel function. Sometimes a tumour or cancer that’s spread to the abdominal cavity leads to bowel obstruction, which may require surgical treatment. Symptoms of bowel obstruction include constipation, nausea, vomiting, and stomach pain. Bowel obstruction requires acute medical attention (contact the unit responsible for your care or visit the emergency department); in the case of advanced cancer, symptoms of bowel obstruction can also be relieved with medication.

Build-up of fluid in the abdomen

It’s also possible for a build-up of fluid to develop in the abdominal cavity, causing the belly to swell and become bloated. The excess fluid can be removed with a needle or through a drainage catheter, which rapidly relieves the symptoms.

Symptoms caused by tumours in the pelvic area

If rectal cancer spreads to the pelvic area, it may cause pain and difficulty urinating or problems with passing stools. Sometimes a tumour forms an opening (also called a “fistula”) between organs or through the skin (for example, between the bladder and the bowel, between the bowel and the vagina or through the skin). A tumour can cause tissue damage and nerve compression in the pelvic area, resulting in pain. Symptoms caused by tumours may be relieved with radiation therapy, and sometimes with surgical operations like by creating a stoma (an artificial opening). In the case of severe pain, special techniques such as spinal pain management may be used. This involves inserting a catheter to administer pain medicine and numbing anaesthetics into the space around the spinal cord containing cerebrospinal fluid. This treatment can also take place at home.

Psychological strain

Having an illness puts strain on the mind too. Living with a long-term illness includes both good and bad moments. It’s good to talk to the care team about how you’re coping mentally. Depression and anxiety can be managed both by talking and with medication. Peer support may also be helpful.

While cancer treatment is still ongoing, it’s advisable to contact the unit responsible for your care if your general condition worsens, you develop symptoms that interfere with your life, or your symptoms get worse. Units specialised in cancer treatment have expertise in palliative care, including symptom relief and pain management. All cancer units in university hospitals, and most central hospitals, have palliative care units that can help with symptom management. Psychosocial support and talk support is also available. It’s a good idea to get acquainted with the local palliative unit while undergoing active cancer treatment, so that palliative care can be offered and planned early on.

When it’s time to end active cancer treatment, palliative care continues – at this point, the patient should be assigned a care provider in charge of their palliative care, and provided with a palliative care plan. No one should be left to cope with their illness alone.

At the end of life, the care provider in charge of the patient’s care preferably attends to the patient either at or close to the patient’s home. This can be a palliative outpatient clinic, inpatient ward at a regional hospital (formerly health centre hospital), home hospital, palliative ward, or a hospice. For assistance with essential care needs, home care services are employed. The important thing is to have a plan ready for where to get help at any time of the day or week.

At the end of life, going to the emergency department is a taxing experience. That’s why it’s preferably avoided by cooperating with the care team ahead of time to prepare a plan for what to do if the patient’s condition gets worse or if their symptoms change. Unless it’s an acute medical emergency, it’s advisable to contact the unit responsible for the patient’s care before visiting the emergency department. If the patient has pre-existing access to home hospital services, a nurse or doctor can visit the patient at home and assess the situation, if necessary, or make arrangements for transfer to inpatient care (support ward) without the need to visit the emergency department.

    Updated 8.4.2025